27/10/2026
I’m begging. If there is one post of mine you share, please let it be this one 😭
Yesterday I was on such a high after being interviewed by Sky News, getting Tate’s story out there and hoping it would bring him closer to the help he needs.
Today I’ve received an email saying the estimated cost of getting him treated in America could be between £3 million and £3.75 million. That includes the gene therapy itself, plus hospital stays, medication, tests and the care he would need.
It’s an estimate, but reading those numbers has absolutely floored me.
It started at £1.5 million estimate.
Treatment was approved and it went to £2.95 million, but now knowing how much all the extras will be? 😭
Riding this wave is hard. This is my son’s life, and I’m one desperate mum trying to raise millions while watching him show signs of the condition progressing.
So please, if you’re doing anything where you could raise money, would you consider doing it for Tate? We are underneath a charity so companies can get involved 🫶🏼
💜 Signing up for a 5K, 10K, half marathon or sponsored walk?
💜 Choosing a charity for your work Christmas party, collection or Christmas jumper day?
💜 Could your workplace match donations or sponsor a fundraiser?
💜 Could you organise a bake sale, coffee morning, quiz or sponsored challenge?
💜 Could your school, gym, football team or local pub get involved?
You don’t have to raise thousands. Whether it’s £20, £100 or more, it all adds up. If 100 people raised £20 each, that would be £2,000 towards getting Tate treatment.
If you know someone planning a fundraiser, please tell them about him. If you know a business that might help, please put me in touch. And if you can’t donate or fundraise, please share this post. You could reach someone who can.
Tate has Sanfilippo syndrome, a terminal condition that causes childhood dementia. I’m trying to get him treatment that could stop its progression. Time matters, and I cannot do this alone.
Please help me give my little man a chance. I need as many people as possible behind him. 💜
The link for anyone wanting to see how much we’ve raised already and if you want to donate 🥲💜
https://www.justgiving.com/campaign/savingtatefightagainstchildhooddementia
